Our children waited too long for same diagnosis as Jesy Nelson’s twins
Source: BBC
Charlie BrownDani-Rae Brown could not move her legs at five months old, when her first symptoms of Spinal Muscular Atrophy (SMA) started to showParents of babies born with a life-limiting, rare condition say their diagnoses came months too late, and after they had initially raised the alarm about their symptoms.Dani-Rae Brown was diagnosed with Spinal Muscular Atrophy (SMA) seven months after her first symptom…
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